Paddy and I got married 13 years ago when we were the ripe young age of 19.
In the first year as many couples do we wanted to start a family. It was time. We wanted to have babies of our own. It was also in that first year that we had our first pregnancy loss.
We experienced a ruptured ectopic pregnancy, yet we were back on the train to try again which we then suffered our secondary infertility. Our prayed over and over our time will come.
Fast forward four years later we welcomed our first little girl Alliyah. What a beauty she was she was she came into this world to fill our hearts with immense pride and joy.
Alliyah was everything we had dreamt off yet she was showing some concerning symptoms once we started introducing food. We were first time parents so still learning but we just knew something was not quite right with our little girl.
We are talking Vomiting, chocking, weight loss, major food refusal. She was not able to swallow certain foods very well without them being completely smooth.
Alliyah went through years of tests and was diagnosed with Eosinophilic esophagitis.
Eosinophilic esophagitis (EoE) is a chronic, allergic inflammatory disease of the esophagus (the tube connecting the mouth to the stomach). It occurs when a type of white blood cell, the eosinophil, accumulates in the esophagus. The elevated number of eosinophils cause injury and inflammation to the esophagus.
During that time and dealing with the cards that we had been dealt with our first born baby we lost another two babies. It was another ectopic pregnancy and then a sweet baby with trisomy 16.
During this time where are hearts were healing we found some light. We welcomed our second daughter, Chloe who is now 5, she’s a beautiful firecracker and just what we needed to heal our broken hearts.
We then welcomed another sweet girl Ella, who is 2.5 now!
Things with Ella seemed like a dream. She was such a good feeder, chunky, and such a good sleeper! (yay for good sleepers!)
Until one day when this dream bubble that we were living suddenly changed.
Ella dropped weight, fast.
She started dumping, (undigested milk in her nappy) and vomiting nonstop.
The doctors recommended that we start solids, and things then got worst. We were living in a complete nightmare watching our baby so sick.
She was vomiting so much she would end up unconscious. Grey and floppy. Something that no parent ever wants to see their little baby go through. This was happening every single time she ate. It happened with every sort of food she consumed. S he was losing more and more weight and again, our hearts started to break.
Ella was then diagnosed with Food protein-induced enterocolitis syndrome (FPIES)m which is an adverse food reaction involving the immune system that mainly affects infants and young children. It is caused by an allergic reaction to one or more ingested foods which results in inflammation of the small and large intestine.
Ella only had two safe foods at the time, sweet potato and pumpkin.
She was so malnourished that the doctors decided she needed some help and her tube feeding journey began.